HealthTree Expands Innovative Technology to Provide Continuous Real-World Myeloma Data (RWD) to Researchers in New HealthTree Research Hub Portal
SALT LAKE CITY, Utah, March 1, 2024 /PRNewswire/ — HealthTree Foundation, a global nonprofit organization using cutting-edge technology that unites patients and researchers to accelerate cures, is excited to announce the release of its highly anticipated HealthTree Research. Hub Portal.
HealthTree Research Hub is an online research portal that makes it easy to find real-world data (RWD). HealthTree Research Hub gives researchers access to more than 14,000 myeloma patients who contribute anonymized data to the HealthTree Cure Hub patient portal. This data includes electronically imported EHR data (labs, genetics, prior treatment lines, outcomes data, etc.) as well as patient-reported data, such as patient-reported outcomes (PROs) and demographics . Patients can also respond to surveys or studies conducted by researchers within HealthTree Cure Hub. Data is validated by a team of HealthTree healthcare professionals.
The tool builds a living, ongoing, interactive relationship between patients and researchers, paving the way for revolutionary approaches to new research that saves time, money and lives.
“HealthTree Research Hub is the only tool that provides access to larger, more comprehensive, and constantly updated data sets,” said Jenny Ahlstrom, CEO and founder of HealthTree. “Traditional RWD challenges related to incomplete or inaccurate data, missing patient-reported results, or loss to follow-up issues are overcome through HealthTree’s relationship with patients and its validation process. »
“HealthTree Research Hub opens new doors to the research community by providing access to comprehensive, validated RWDs from directly connected EHRs and patients themselves,” said Rafael Fonseca, MD and chief innovation officer, Mayo Clinic . “Thank you HealthTree for creating the tools we need to invite thousands of patients to contribute to research outside of clinical trials to support faster cures.”
In HealthTree Research Hub, myeloma investigators can perform data mining, chart reviews, synthetic control arm comparisons, or surveys and studies. Researchers are provided with an R-studio username/password and research tools to analyze subsets of anonymized data based on project needs.
“HealthTree had the financial resources, a willing virtual patient base and the research tools available for us to survey patients and collect their responses via an IRB-approved protocol,” said Craig Hofmeister, MD, Emory University. “Their team worked collaboratively with us to create the survey, distribute it to patients, analyze the results and develop the future publication. It was a great experience for our team.
HealthTree Research Hub will facilitate more than 100 research projects over the next 20 months for myeloma researchers. A call for research proposals on multiple myeloma opens March 1, 2024. Any researcher who joins the HealthTree research network will have free access to the data.
HealthTree Research Hub will also be open for beta research projects in lymphoma, leukemia and MPN in 2024.
About the HealthTree Foundation
HealthTree is a global nonprofit organization that connects patients and researchers with cutting-edge technology to work together to cure cancer. Founded to improve outcomes and lifespans for patients with blood cancers and ultimately find a cure, HealthTree provides personalized, lifelong support and education, meaningful patient-to-patient connections, and a powerful patient data portal . In this way, HealthTree can transform patients and caregivers into active contributors to achieving life-saving advances. Through the deep trust established with HealthTree’s patient community, the organization is able to provide researchers with real, continually updated patient data, which proves invaluable in providing extraordinary care and accelerating outcomes. healings. Visit treehealth.org Today.
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SOURCE HealthTree Foundation
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